The Most Common Disease You’ve Never Heard Of | Shannon Cohn | TEDxUniversityofMississippi

The Most Common Disease You’ve Never Heard Of | Shannon Cohn | TEDxUniversityofMississippi

Do you know the most common, debilitating disease that most people have never heard of? Every year, countless women are forced to leave careers they love, abandon dreams of having children, watch their personal relationships suffer and live in unspeakable pain. Endometriosis: It affects an estimated 176 million girls & women, yet takes an average of 10 years & 8 doctors to diagnose. Many doctors and even loved ones tell them to toughen up, live with the pain or it’s all in their heads. Filmmaker and activist Shannon Cohn explores this troubling phenomenon & why historically women’s pain hasn’t been taken seriously. She asks: What does the widespread prevalence of this misunderstood, devastating disease say about the world we live in & what do we all risk by ignoring the voices of so many women?

Shannon Cohn is a lawyer, documentary filmmaker, and activist who has spent the past decade producing TV series & award-winning feature films. Her latest film is about a rarely discussed and vastly misunderstood disease affecting millions of women today.

This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at http://ted.com/tedx

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36 Responses to "The Most Common Disease You’ve Never Heard Of | Shannon Cohn | TEDxUniversityofMississippi"

  1. Holly Bynoe   25 March، 2019 at 19:21

    Thank you for this! 🙏🏽

    Reply
  2. N V   25 March، 2019 at 19:21

    Thank you 💕

    Reply
  3. Infinity Reaper   25 March، 2019 at 19:21

    when medical industry gets a huge donation to cure some disease they build a new building and spend all the money on ways for them to make more money, and no new techniques or technology. the koreans have developed less invasive endometriosis treatments than americans have: a procedure called catheter-directed sclerotherapy for ovarian endometrioma was tested in 2018 with great success, not by americans of course, but south koreans. there are several natural products that can reduce cysts and treat the symptoms of endometriosis, which no one will tell you about. diet is super important, the average american doctor won't review your toxic eating habits with you. and neither will this chick in the video. she just likes to look sweet and caring and collect 2k+ 'likes'. if you have endometriosis the medical establishment is happy for you to continue to have endometriosis, in fact they only wish more women had it, their super expensive outdated surgical procedures make endometriosis a real cash cow for them.

    Reply
  4. Audreona Harrell   25 March، 2019 at 19:21

    I have adenomyosis and pcos it took me 5 years to find out. Two illnesses that can't be cured yet. I'm in pain all the time and I was given birth control to stop the bleeding .

    Reply
  5. Jennifer Berry   25 March، 2019 at 19:21

    Endo sucks!!!!!!! I said endo what???? After my laparoscopy in 2009. And ya complaining about the lady bits is not the thing we want to get attention for. I went through every test for gastro issues and to pain management and was told I was a drug seeker. From the age of 13 a wondering wound oh god yes it’s the womb but it’s not wandering it’s beige scarred down to everything near the lesion

    Reply
  6. Sofia Cohn   25 March، 2019 at 19:21

    Something depressing is, almost literally everyone commenting is commenting on their experiences with the disease, so mostly everyone here already had it diagnosed so it was pretty much useless to them.

    Reply
  7. Addewyn Wisdomancer   25 March، 2019 at 19:21

    I think I have endometriosis and none of my doctors will listen to me even though I've passed out on the street before and told them I was in 'extreme pain worse than I've ever felt in my whole life'. Even my own mother thinks that I'm 'psychologically weak'. The feeling of being completely invisible is indescribable.

    Reply
  8. Stain'd Heartt   25 March، 2019 at 19:21

    I'm so glad I found this. It made me cry. I have endometriosis, and I have 2 girls. I just pray they don't have to go through this. It is so hard sometines. Thank you!

    Reply
  9. Lisa Colbert   25 March، 2019 at 19:21

    Don't forget to add the possibility of pain med addiction … For which there are several TED vids on.

    Reply
  10. Amber Knighten   25 March، 2019 at 19:21

    As I'm typing this I'm lying in a hospital bed. Just had my first surgery yesterday. A hysterectomy. Had stage 4 endometriosis and had no idea!!!

    Reply
  11. Kat   25 March، 2019 at 19:21

    I'm going to the doctors next month. Let's say I find a doctor who is willing to do surgery, can I "force" them to do excision surgery by telling them I won't consent to it if they try ablation surgery??

    Reply
  12. samissosweet m   25 March، 2019 at 19:21

    💛💛💛💛💛💛

    Reply
  13. Illien Galene   25 March، 2019 at 19:21

    Last week I had my 3rd surgery, I got my left ovary removed, because a cholate cyst engulfed it. I am better now, I first time in my life, I have had no mind blowing pain, I have taken a 6h dose of Painkillers over the course of 3days, to feel perfect! And in the past I needed 1,5g of Painkillers ever 6h, 7-10 days, every 2 weeks.

    Reply
  14. Dahlia Legacy   25 March، 2019 at 19:21

    I'm starting to understand that I maybe had symptoms all my life. I used to be the fastest kid in school, but once puberty hit I had no energy. I also have a lot of gi issues, maybe it's not normal to finish a book series on a toilet? Right now I am healing from surgery where my organs were glued together, stage 4. I just thought pain was normal.

    Reply
  15. Sneha Kothari   25 March، 2019 at 19:21

    Thanks for spreading awareness. It took 17 years for me and my doctors to realise I had endometriosis. It kills me to think behind the days that were horrible.

    Reply
  16. Meghan Marquez   25 March، 2019 at 19:21

    I am in remission thanks to Dr. Cynthia Mosbrucker. I went from level 7-10 daily pain to level ZERO. It took 10 years, many doctors, and 6 surgeries before the insurance agreed to pay for a specialist.

    Reply
  17. elaeda   25 March، 2019 at 19:21

    Things I’ve been told by my doctor: it’s anxiety, it’s ibs, it’s weak muscles. Really?? Weak muscles are causing me this pain in my 20s?!?

    Reply
  18. Diane Snudden   25 March، 2019 at 19:21

    I got my first period when I was 13, I had mild pain and I thought "I can handle this, take an Advil carry on" my second period was excruciating, my family Dr told me that this was normal and that some women have painful periods. As the years progressed so did my pain and despite communicating with my doctor and a gynecologist I was repeatedly scoffed at and turned away. The best I got was birth control which did nothing by the way. By the time I was 24 I was taking up to 9 super strength Motrin each day of my period,… Just to be able to function, I was unable to eliminate the pain but I brought it down to a level I could think straight. It wasn't until my husband and I had being trying to have a baby for 4 years (this is leading up to age 24) with no success, I had multiple miscarriages and then just stopped being able to get pregnant altogether; that my doctor did something. He referee me to a fertility specialist who lined me up for surgery in less than a month. He found stage 3 endometriosis.
    Then proceeded to tell me he could either help me get pregnant or help my pain.
    For the first time in 2 years I tried to go without pain management, my mother in law ended up taking me to the hospital because I was begging my hubby to just punch me in the head and knock me out.
    Emerg Dr. Gave me tordal and for the first time in years 3 pills a day helped me. Fast forward 6 years. Moved across the country and got a new Dr. He didn't like my tordal, switched me to naproxen. Did nothing, I bore through it for 2 months until my husband caught me with a razor blade and a full bottle of Costco Kirkland brand ibuprofen. I was going to end it all, I just didn't think and sometimes still don't think I am strong enough to keep living with this disease. I feel fortunate that my husband loves me so much that he wouldn't let me go. But I wonder more often than not how much longer I can continue like this. I am infertile. I can't keep a job. And I have been searching for purpose in life since I was 14.
    I'll only be 32 this coming February.

    Reply
  19. Alyssa Ciervo   25 March، 2019 at 19:21

    im 19 and ive had all these test come back normal and losing help this gave me hope

    Reply
  20. FMAiscool   25 March، 2019 at 19:21

    I would take any pain over period pain, and I'm not even sure I have endometriosis. People need to get off their asses and research this pain.

    Reply
  21. Jenny McK   25 March، 2019 at 19:21

    I was told it was anxiety, in my head and told to just sleep more. I have endometriosis. 😔

    Reply
  22. Terri Hinton   25 March، 2019 at 19:21

    I had it for years. Ppl rolled their eyes.

    Reply
  23. Aina Rusdi   25 March، 2019 at 19:21

    my eyes got teary at the end of this video. stay strong everyone <3

    Reply
  24. I-GRO Cosmetics   25 March، 2019 at 19:21

    I can relate so much and the worse thing is coming from a 3rd world country Sierra Leone, our Doctors can’t even diagnose such. So I only rely on google for diagnostics and management. I really wish I can raise awareness for such in my country.

    Reply
  25. Saras Varad   25 March، 2019 at 19:21

    Great speech. I too suffer from endi and

    Reply
  26. MissPronounced   25 March، 2019 at 19:21

    This feels very "social justice warrior", but I like that people are talking about endometriosis. (Btw "period" is also a euphemism for menstruation)

    Reply
  27. KidCity Lynnwood   25 March، 2019 at 19:21

    Getting an ovary out cured my endometriosis. It be was a really bad ovary.

    Reply
  28. *Lepa *Love*   25 March، 2019 at 19:21

    Im crying listening to this video …

    Reply
  29. Stanzi Curtis   25 March، 2019 at 19:21

    I find her to be so arousing

    Reply
  30. Susan Wang   25 March، 2019 at 19:21

    In a video by DrJohn Mcdougall, a lady with endometriosis got healed by eliminating dairy. Hope this info could be of help.

    Reply
  31. Teresa Barbosa   25 March، 2019 at 19:21

    My story finally told. This brings tears to my eyes especially when you mentioned that the doctors could not diagnose the disease. Now at 42 Im infertile.

    Reply
  32. Austin   25 March، 2019 at 19:21

    This almost sounds like charles darwin's disease but he's a guy so

    Reply
  33. Tybaby79   25 March، 2019 at 19:21

    OMG this is MY STORY….THANK YOU!

    Reply
  34. Jennifer Berry   25 March، 2019 at 19:21

    I knew it as soon as this started before the name was said. I know I have it much love❤️ so much pain. Started with the pain at 13 know that pain so well. Hate doctors so bad for saying this. Scheduling life around days of the month.
    I have Gastroparesis from the chronic inflammatory process of endo. And kind caring compassionate ha ha. That only happens once you find a doctor who believes you.

    Reply
  35. Kathy Passehl   25 March، 2019 at 19:21

    I suffered for years and only found out I had severe endo after I had to have emergency surgery for an ectopic pregnancy. My pain actually worsen after this and about a year later opted for a lap to remove the lesions in hopes it would help. It did lesson the pain for about 10 months, but it's starting to get bad again! Is it worth going for another surgery??

    Reply
  36. Alex Larson   25 March، 2019 at 19:21

    Thank you!!! I have minimal issues with my periods, but I have multiple friends who have symptoms akin to this, and the idea that extremely painful periods are normal is ingrained in them! It pains me to see so many women suffering and being too intimidated to get the help they need!!

    Reply

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